Tuesday, September 29, 2009

Beautiful Post

I have been reading through some blogs of other parents with prader-willi babies. It is not so easy to find these blogs, but when I do, I find the stories very helpful. They are not always pleasant, but it is good to see I am not alone.

I found a new blog today that I love. After reading 2.5 years worth of posts, I came upon the following post (I find myself asking this question a lot, especially during the tough moments. I love her interpretation of the answer.):

Did you ever wonder how mothers of special needs babies are chosen?

Somehow, I visualize God hovering over Earth, selecting his instruments for propagation with great care and deliberation.

As he observes, he instructs his angels to take notes in a giant ledger.
"Armstrong, Beth, son. Patron Saint, Matthew.
Forrest, Marjorie, daughter. Patron Saint, Celia.
Rutledge, Carrie, twins. Patron Saint. . .give her Gerard. He's used to profanity." Finally, he passes a name to an angel and smiles. "Give her a special needs baby."

The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a special needs baby a mother who knows no laughter? That would be cruel."

"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair. Once the shock and resentment wear off she'll handle it."says God. "I watched her today. She has that sense of self and independence so rare and so necessary in a mother. You see, the child I'm going to give her has a world of its own. She has to make it live in her world, and that's not going to be easy."

"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just the right amount of selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't know it yet, but she is to be envied.

She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see, ignorance, cruelty, prejudice--and allow her to rise above them.
She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."

"And what about her Patron Saint?" asks the angel, his pen poised in the air.
God smiles. "A mirror will suffice"


  1. What a wonderful post and an excellent outlook! May you always be blessed . . .

  2. Profound and uplifting :)

  3. Janet and I both agree that this should have started with a disclaimer of "Do not read at work or while driving!". While little Delilah has been blessed to have you as her Mother, you too have been blessed to have her in your life. It is true that you will never be alone as you walk this special path of Motherhood. I love you very much!!


  4. Kera- what a beautiful post! You are the perfect mother for Delilah and I do believe God picked you for a reason. She is a precious baby and you will guide her through life. Love ya - Lisette

  5. That was a wonderful post! I think it just made my day better! I could tell in that short time I saw you and Delilah, God had made the right choice! ~Aryn

  6. What a wonderful blog -- and be assured that God is always there. Especially through the toughest times. If you need help researching anything on the internet, please let me know -- its actually one of the things I do well and would be glad to know I could help out somehow from far away! Just send me an email (keynamcjilton@aol.com) --Keyna