Sorry for the long stretch between posts. It has been really busy around here. Now that I have a brief break between visits with Delilah, it is time to share all the good news.
As you all know, all the tests have come back normal. WOOHOO!!! We finally heard from the Neurologist Monday. At this time they will not do anymore tests. He said he has seen several babies like her and basically her muscles are just a little slow to mature. They just need time and some therapy (which we can continue from home when she is discharged). So now all we have to do is get her eating without the TP Tube and we will be able to bring her home.
Sally, the occupational therapist, has been working with her, and we finally met with her and talked about her progress. Sally was so impressed with her progress she showed me some techniques to get her to suck and swallow so that I could start feeding her. That's right, I FINALLY got to feed my baby! Our first bottle feed together was yesterday morning. Delilah ate 10 mls in a hour. Not great, but pretty good for our first time together. Sally got 19 mls in her in a half hour later that afternoon. Sally has the magic touch, but she was impressed with our first feed together. (Delilah needs to take 40 mls in a half hour in order to go home, either by bottle, breast, or both.)
When I went in this morning to feed her, I got some even better news. I was able to nurse her for the first time. The doctor has decided that I will nurse her once a day and Sally will bottle feed her in the afternoon. As she continues to progress, we will up the feeds and hopefully remove that ugly TP Tube.
For her first time nursing she did extremely well. The lactation nurse was very impressed with her, gave her an A+. She never expected Delilah to do so well on her first time. I am such a proud mommy!!!! I can't wait to see what she does tonight!
Below are some pictures taken in the last few days. Daddy is so proud as are her Godparents Bradley and Jennifer. She is always surrounded with love!
We are so proud of her. She is the cutest, smartest, strongest, most perfect baby ever! I am so glad she is having such great progress. Tell her to keep up the good work and continue to get those good reports.
ReplyDeleteKera I'm so glad that she is doing better. I know that she will continue developing so that you and John will finally be able to take her home and enjoy her. We are praying for you and your family. If you ever need to talk just call me.
ReplyDeleteJamie