Yesterday was D-Day! Discharge Day!!!! Delilah officially left the NICU at 5:41pm (which you can see in the photo). After 4 weeks of waiting we finally were able to bring her home. One of the most stressful car rides ever; especially in the middle of 280 rush hour. (For those unfamiliar with 280, rush hour lasts for more then an hour, more like 24 hours.)
We are so happy and relieved to have her home. We cannot thank all of you enough for your prayers. It is wonderful knowing there are so many people out there who love us. We can't wait to introduce her to everyone.
However, Delilah has a few more hurdles ahead of her. There has been a preliminary positive blood test for Prader-Willi Syndrome (PWS). We don't know a lot about it right now, but we have follow up appointments with the Geneticist to do more tests and to learn more about PWS. I have done very little research myself (don't want to over react to anything until I speak with the Geneticist). I know that it affects eating habits, causing childhood obesity, and she could possibly have future learning disabilities. I am very optimistic, though. She has already proved she is great at breast feeding, which most babies with PWS cannot achieve. And, according to Sally, the occupational therapist, her muscle tone is back to normal for her age. Please keep those prayers coming as we learn more. I will keep everyone posted, but results and news will be a few months coming. Until then, I will keep you all updated on her day to day life at home with Mommy and Daddy.
By the way...today she is 1 MONTH OLD. Unbelievable! Time really does fly with a new baby!
Welcome home little one! I know your Mommy and Daddy (and Nana) are so glad to have you home finally. You look absolutly adorable in your swing and very happy too. I cannot wait to see you. We love you very much!
ReplyDeleteI'm so happy she got to go home. She is so precious!
ReplyDeleteSo glad to hear she is home!! We will continue to pray for you guys and sweet Delilah!
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