Little Scooter

Last night, when we put Delilah to bed, she was in the below position:

To our surprise, when we woke up, we found that she had scooted to the following position:

She is such an amazing little girl! I am blown away by her progress! Her neck control is getting better everyday. And, according to John and Brad, she laughed at Daddy yesterday while Jenn and I were out getting her some new toys to stimulate her hands. We are finally beginning to see her beautiful personality! I love this little girl!!!

House Hunting

So, we have some great news. We have started the wonderfully, exhausting process of searching for our first home. I have been scouring the net for homes in the areas of interest and most importantly in our price range. Who knew just sitting in front of my computer looking at homes would be so exhausting?!? I think I have looked at every home in our price range three or four times each. It is time to get off the couch and actually visit these houses, which I finally did today.

I went and looked at a home in Pinson. A home that has been on the top of my list. I loved the open floor plan and super sized yard. However, I was not a fan of the stacked washer and dryer in the kitchen's only pantry. I NEED a pantry. Correction, Delilah needs the pantry. With PWS, she will eventually begin to search for food, and we need to be able to lock it up to protect her. We cannot accomplish this without a pantry. Besides, who puts a washer and dryer in their kitchen when they have a perfectly good basement and garage? Well, that was answered almost immediately. The stairs leading to the basement were "break your neck" steep. Such a shame. The basement had been beautifully finished with a spare bedroom, game room, and den. There was no way I would ever let Delilah climb those stairs; I'm too afraid to do it myself.

Oh well. That was only the first house. Tomorrow is a new day and I will be spending it with our Realtor, Amber. Wish me luck!

Better late then never!

I have been getting a lot of layouts done lately. I joined ScrapGirls.com, and almost everyday they have a challenge. This really helps me get things done, because it gets my creative juices flowing. It usually only takes about 20 minutes to do a layout. 

For all those interested, Delilah and I will be in Niceville next Wednesday thru Sunday visiting my beautiful nephew, Wyatt. I can't wait to get some pictures of the three kids together. Family is GREAT!!!

Sibling Layout

I know this doesn't have to do with little Miss Delilah, but I was pretty pleased with this layout and wanted to share it with everyone. I have very few pictures of the three of us together. 

New Scrapbook Layout

Blogging Backgrounds

For all of you who have been following the last couple of days, you have probably noticed the background keeps changing. That would be because I have found sites that allow me to change the background with super cute designs. And they are FREE!!! So much fun for me, as I have little time for scrapbooking with school and Miss Delilah. It lets me be creative without the work. If you haven't already guessed, I will be changing the background often! Any day it could be different, so keep a look out.

Delilah Update: Not much to update except that she is the cutest little girl in the whole wide world. Every time she stretches, I want to pinch her little cheeks and kiss her all over. Also, she has been doing the funniest thing lately with her mouth. She has discovered her tongue and she loves to stick it out. It is so cute. One day I will get it on camera.

Prader-Willi Syndrome

We finally heard back from the tests results. Delilah has been diagnosed with Prader-Willi syndrome (PWS). We have had a few days to process this news and now have a better understanding of what this means. For infants, PWS causes poor muscle tone and strength. Most babies with PWS have problems feeding and usually spend a long period of time on feeding tubes. We are happy to say this is not the case with Delilah. She did have the feeding tubes for a short period of time, but she has excelled at bottle feeding. The girl can eat. Most babies also have a hard time gaining weight and growing. So far Delilah has done very well in both accounts. I have arranged with her Pediatrician to have her weighed and measured every month instead of waiting for the normal baby visits.

The effects of PWS are most drastic later on in life. One of the main concerns is the insatiable appetite it can/will cause, leading to childhood obesity if not controlled. In most cases, food has to be closely monitored, even locked up. There is also the possibility if learning disabilities. We are lucky enough to have the benefits of Nutritionists and fantastic learning tools to help curb these problems. (For more detailed information please use the link I have provided on the right hand side of the blog. I have also included a link for donations to the PWS Association for the fight for the cure.)

During this time, we will begin working with her therapists and doctors to build up her muscle tone and strength and discuss things to do to help her development. The next coming weeks and months will hopefully shed some more light. PWS will not deter us from loving and raising an amazing little girl. In some respects we are lucky. We could have been dealing with something much worse then PWS. Delilah will be able to lead a relatively normal life, with just a few restrictions. It will be a life full of insurmountable love.