Wednesday, August 17, 2011

Quiet = Mischief

I learned a lesson yesterday. Whenever Delilah is being very quiet in her room, she is up to no good! Here is the evidence:
(Sorry for the quality. I took this pic with my phone.)

I have no idea where she found the marker, but she did a great job coloring. As soon as I entered her room to check on her, I had to walk back out. I was laughing so hard tears were streaming down my cheeks. I will be using today's nap time to track down all markers, crayons, and writing tools and relocating them to higher shelves. Apparently she has learned to take of the caps and open drawers, so nothing is safe. 


Oh, and just so you don't forget, the Scotiabank One SMALL Step walk is next Saturday. Please help us reach our goal and register or donate today. http://onesmallstep.fpwr.org/dw/walking/location/34

Monday, August 15, 2011

2 weeks away

Holy moly! We are only 2 weeks away from our Scotia Bank, One SMALL Step Walk. I can't tell you how anxious and stressed this makes me. As this is the first time I am doing anything like this, we are keeping things simple and focusing on donations. We will have some fun, simple children's activities and some great prizes to raffle off. Please consider registering online today at http://onesmallstep.fpwr.org/dw/walking/location/34. Registration is free and you receive a free t-shirt with $40 raised/donated. My goal for this walk is to raise $10,000. Remember, every dollar counts!

Monday, August 8, 2011

Crazy

Life has been unusually crazy around here. Unfortunately, it has caused me to drop the ball on a few things, especially updating this blog and promoting our One SMALL Step Walk. Eek! Now that things have somewhat settled down around here, maybe I can get some things done.

One update on Delilah that I am excited to tell you about is her improvement in Speech. It seems like, in the past few weeks, her vocabulary has flourished. She is saying so many new words, it is hard to keep up. She is also articulating things better. "Baby" is no longer "baba". She pronounces it perfectly. She is also using peoples names. We refer to my MIL as Gran Deanie. She says "Deanie" perfectly. It is so cute! Gran Deanie also taught her a new word, "diamond". LOL!

We are also 3 weeks out from our fundraiser. As this is the first time I have ever done something like this, I am a bit stressed. I am hoping to get a good turnout and need people to register at http://onesmallstep.fpwr.org/dw/walking/location/34. Even if you can't make the walk, please consider creating a fundraising page and seeking out donations. Every dollar raised will go towards research, and we desperately need to find a cure.

Also, please, please help promote awareness about PWS by posting links to our walk on Facebook. Just think about the amount of money we could raise if all of our Facebook friends donated just $1, and then all of their friends. Every dollar counts!